American Association of Kidney Patients
AAKP is a kidney organization run by kidney patients. It has many brochures, newsletters, and resources to help people with chronic kidney disease (CKD) manage their lives. Patients can learn about educational programs, events, and policy briefs.
American Kidney Fund
AKF is the #1 source for financial assistance to kidney patients. AKF provides free pharmacy products as well as grants to help patients with costs not covered by other sources. AKF also provides education and outreach to people who are at risk for kidney disease.
AV Fistula First
First Sponsored by CMS, this website is devoted to everything about AV fistulas. It has information for both patients and professionals.
Dialysis Facility Compare
Sponsored by the Centers for Medicare & Medicaid Services (CMS), this website allows patients to find and compare information about dialysis facilities in every state. Patients can search for facilities by name, city or state. Medicare’s coverage for dialysis is also discussed.
Dialysis Patient Citizens
DPC is an independent, dialysis patient organization. It is dedicated to improving dialysis patients' quality of life. DPC advocates for dialysis and pre-dialysis patients and promotes favorable public policy. It works to improve the partnership between patients and caregivers.
Home Dialysis Central
This website helps you to find home dialysis centers near you. The site provides education about the types of home dialysis, updates on technology and equipment, and discussion boards to help you connect with other dialysis patients.
Kidney Patient News
The site offers information and resources for kidney patients and their families, including treatment options and vascular access types, diet and nutrition, and emergency and disaster preparation.
Kidney School is an interactive, web-based learning program. It was designed to help people understand kidney disease and its treatment, adjust to kidney disease, make good medical choices and live as fully as possible. Click on the table of contents to pick the topics that most interest you.
Libre Infusion Clothing
Libre LLC, promises to provide innovative clothing solutions to enhance the quality of life for dialysis and infusion patients.
Life Options Rehabilitation Program
Life Options provides free fact sheets, videos and booklets to help people live long and well with kidney disease. The site includes many resources about vocational rehabilitation.
National Institutof Diabetes and Digestive and Kidney Disease
National Kidney Disease Education Program
This site includes many resources about kidney disease and testing. Educational materials can be downloaded or ordered directly.
National Kidney and Urologic Diseases Information Clearinghouse
This organization provides detailed information about CKD and treatment options, including home dialysis and kidney transplantation. The site also includes the NIDDK reference collection, a database of health education materials for patients and providers.
The National Kidney Foundation, Inc.
NKF has many educational resources about CKD and urinary tract diseases. The foundation’s website provides kidney patients with access to the latest news, events and advocacy efforts.
Renal Support Network
RSN is a nonprofit, patient-focused, patient-run organization that provides non-medical services to those affected by CKD and strives to motivate and assist patients in developing their personal coping skills, special talents, and employability by educating and empowering them (and family members) to take control of the course and management of their disease. RSN helps people with kidney disease become self-sufficient thru education, advocacy, and hope for a better tomorrow.
(800) 579-1970 – HOPEline, for peer support and info.
United Network for Organ Sharing
700 North 4th Street
Richmond, Virginia 23219